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Four-year-old Jonathan Pitre, who suffers from Epidermolysis Bullosa (EB) - a rare disease defined by severe blistering and shearing of the skin that leaves him in constant pain, stands by a heater to stay warm until his bandages are reapplied for another day in Ottawa on October 21, 2014. Photo by Julie Oliver / Ottawa Citizen

Jonathan Pitre, âgé de quatre ans, qui souffre d’épidermolyse bulleuse, une affection cutanée qui lui cause des douleurs permanentes, se tient près d’un radiateur pour rester au chaud avant qu’on refasse ses bandages à Ottawa le 21 octobre 2014. Photo par Julie Oliver/Ottawa Citizen

2014F

Fourteen-year-old Jonathan Pitre, who suffers from Epidermolysis Bullosa (EB) – a rare disease defined by severe blistering and shearing of the skin that leaves him in constant pain, stands by a heater to stay warm until his bandages are reapplied for another day in Ottawa on October 21, 2014. Photo by Julie Oliver / Ottawa Citizen